4 people who haven't let their rare syndromes affect their self-esteem

Living with a rare condition that makes you look different than usual can be very bad for some people's self-esteem. However, as these are often irreversible situations, some sufferers choose to live fully, using syndromes as a way of boosting their lives and showing that it is possible to have self-esteem even if they do not fit a pattern. Check out some examples:

1. Sara Geurts - Ehlers-Danlos Syndrome

American lawyer and model Sara Geurts, 26, appears to be much older because of Ehlers-Danlos syndrome, a set of diseases that affect connective tissue, leaving the skin, blood vessels, bones and some malformed organs that can even be fatal. Sara decided to revert her potentially suffering condition to something inspiring to help raise awareness of this syndrome.

2. Ilka Brühl - Ectodermal Dysplasia

German 26-year-old Ilka Brühl was born with ectodermal dysplasia, a genetic mutation that causes malformations in the bones of the face, thinner eyelids and fewer eyebrows and eyelashes. It can also affect nails and hair, but despite being directly related to physical appearance, dysplasia did not prevent Ilka from becoming a model and using her influence to talk about her condition.

3. Helge Claar - Anisocoria

Swedish medical student Helge Claar discovered one day with anisocoria, a condition in which one of the pupils becomes much larger than the other. The difference in size, when minimal, may be from birth, but when it appears suddenly it may be some more serious sign, including brain tumor or optic nerve problems. Usually anisocoria appears accompanied by severe headaches and light sensitivity, but may have treatment.

4. Stef Sanjati - Waardenburg Syndrome

Canadian Stef Sanjati draws attention on social media because of her incredible blue eye, but this is not because of a privileged genetics: she suffers from Waardenburg syndrome, which can cause changes in skin, hair and eye pigmentation., usually making them intensely blue, but also often lead to hearing loss and physical deformities.

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