Have you heard of Moebius Syndrome?

How many times have you smiled today? Anything goes: from the yellow laugh to greet someone in the elevator to the good morning smile you give that co-worker. Chances are you smiled, but you may not know that there are people out there who just can't do the same.

In some cases, due to specific medical and clinical conditions, some people may be born with a neuronal dysfunction that makes the movement of the face muscles virtually impossible. We are talking about Moebius Syndrome, which became known by that name after its first reports in 1892 by physician Julius Moebius.

Since then, she continues to be diagnosed in newborn children. The cause for this condition is still unknown, but in some cases it may be related to medication use during pregnancy.

In addition to paralysis of the facial muscles, the syndrome can compromise patients' orthopedic development, causing some bones to be congenitally curved - in most cases surgical repair is possible.

Treatments

Unfortunately, there is no cure for Moebius, but treatments and therapies can be done to improve the quality of life of patients. These therapies should assist the patient in several aspects, enabling better motor, cognitive, dental, social and emotional conditions. The mental and intellectual development of those with the syndrome is normal. However, these people may face psychological problems due to acceptance of the problem, but this is not necessarily one of the characteristics of the syndrome.

These psychological and emotional issues are dealt with daily, throughout life, whether with the help of professionals or with the support of friends, family and even strangers. There are discussion groups in social networks, in which carriers share information, vent and support each other. Social acceptance is another important factor, as lack of information on the subject is an open door to prejudice.

Currently, it is estimated that just over 350 people are diagnosed with Moebius worldwide. Some of them live here in Brazil, including, and report that people often look at them with expressions of fright, judgment and, unfortunately, even contempt.

Mexican Dr. Roxana Lizbeth Canchola González is a patient who has been successful in her efforts. After many facials and exercises, she was able to smile for the first time at age 26. If you want to know her story, click here (in Spanish and English).